My beautiful Ashlin. Over the course of time I've been writing here, it's been almost 4 years. She started kindergarten and we rejoiced and celebrated that sweet milestone and all the fun that comes with that year. And as we moved forward things became hard and got harder and eventually we had to seek intervention. If you're in the public school system, then you know there are programs in place to help your child catch up if they're behind (some are effective, some not so much). Though getting that intervention depends much on the teacher and counselors in the school. Fortunately Ash had a great kindergarten teacher who was pro-active in getting her some much needed help that first year. Little did we know, the learning gap for her would only get bigger after that. And getting help would become next to impossible.
Near the middle of her first grade year, we were spending close to 2 hours on homework a night. And it was painful. She was extremely behind state standards (though I've never been too concerned about that, as long as we saw steady growth, no matter how slow). John and I began asking for a psychological evaluation from the school that could possibly get her a more thorough, consistent, and tailored intervention. Both her EIP and classroom teachers were in agreement and got all kinds of reports together for us to help as we approached the school psychologist with our request.
Here's where I want you to pay attention, we made some major mistakes at this turn in the road. But God's been so good at redeeming and redirecting us. The first meeting with the school psychologist was just to present the case to her and have her evaluate the information as we were requesting what they call full spectrum testing. When I tell you this woman was errogant, this is a mild description of her demeanor with us. She'd never met my daughter. Never cracked her file. And had no information to base her very strong opinion on. But, she sat at the end of the table from us and looked at my daughter's file for the first time, then declared there would be no testing. She was extremely busy and there were no behavioral issues to back up her learning issues. John literally sat with his mouth open, then said, "You mean to tell me, you haven't even looked at her file before today. And you're taking two minutes to judge the situation?" Her reply was a pert yes, and that she'd been doing her job for a long time. We left furious and defeated. The teachers began compiling information to support our case and in a few weeks we tried again. She gave us another no and seemed bothered by the fact that we hadn't taken her at her word that there was nothing wrong. She didn't seemed bothered by Ashlin's struggles at all and seemed to feel it would work itself out, that we must not be doing something right. Folks, I'm not exxagerating. We had one more of these exasperating meeting a few weeks later. And I left exausted. I can remember walking through the hardware store afterward and feeling lost and fuzzy. I kept thinking, we're stuck. And no one cares enough to help my precious child.
We went back to the school a few hours later to pick her up in afternoon carpool, and when we pulled in one of the teachers came out and asked us to park because the assistant principal wanted to talk with us. She came out with a stack of paperwork and a smile on her face. And said she'd heard what had been happening and she had made an executive decision to step in and request the testing herself. She'd even ordered it done by the end of the year, which was only a few weeks away at this point. She apologized and told us that anything she could do to help, all we had to do was ask. She was a god-send. And we were stoked! We thought we had victory!
It was four weeks later that we came back to that small little conference room eager to get the results because we were positive we would soon be getting help. The psychologist sat at the end of the table and smugly began to tell us that the test had been inconclusive, really. And like she had suspected, there were no real problems. She asked us to sign the test saying that we understood what she had said. That was all that was explained. And we knew to do nothing else. We felt helpless at that point. I knew nothing about parent advocates. Nobody had told me we could have refused to sign that test. That we we could have demanded further testing until we got help. We truly had no idea. We knew when we left that day that something fishy had happened. We just didn't know what to do about it, or who to ask even.
So as we started her second grade year, we felt a little lost. I met with the teacher and again discussed our concerns. She assured me she was going to do the best she could to help Ashlin. Six weeks into the school year, she's missed out on an enormous amount of recess and had not been allowed to go to the library because she was unable to finish her work. Even though the teacher had said she would make allowances for decreased work load and extra time. Ashlin felt she was being punished. I don't blame her. It was then that a dear friend introduced me to Georgia Cyber Academy, and we applied immediately. I pulled her out in October and we never looked back.
Having her home and learning during the school day made it painfully obvious that there were needs I couldn't meet. We worked to give her what she needed. Time, space, encouragement. But there was so much frustration. When I tell you she was slow, I mean, sometimes it would take us until dinner time to complete a days work. That's even with me minimizing her work load and only focusing on the essentials. Because I was aware of every missed word, every fumbled number. It made my heart hurt because nothing was done without much deliberation. Even when we figured out ways to help her...she's very kinestetic and we would do our best to make most things hands on. But that never sped things up. We made it through the end of the year but didn't move on into third grade work once the new school year began. We continued second grade math and language. And her precious third grade teacher worked with me to get her into programs that fit her needs.
God kept telling me that she'd begin 2012 in a new school. Though I had no plans for that and didn't know what that meant exactly. It was also around this time that I heard about the new charter school in Cherokee County, and though the school year had already begun, on a lark, I put in an application for her.
I felt like we needed to try having her tested again. Only privately this time. This was a step in faith because, if you haven't ever looked into it, this can cost you the price of your first born. But, when I started looking for psychologists in our network that were close to Woodstock, one name continued to come up. So, I crossed my fingers, prayed, and made an appointment. I fell in love with this doctor in the first consultation. Not because she was overly gushy and sweet. But because she was thorough and was truly interested in helping my child. We made the appointments for testing, but eventually had to make several more, because bless her heart, Ashlin is so slow. And when the results came back and she described both auditory and visual dyslexia, we weren't quite sure how to move forward. She'd found such a defecit that she'd suggested putting her into one of the ridiculously expensive private schools that specifically address the needs of dyslexic children. But, we don't have an extra $20,000 lying around the house. And we had been told by more than one person that the public school system was not equipped to handle dyslexia.We were at a loss.
It was literally the day after her diagnosis that I recieved an email from Cherokee Charter Academy offering Ashlin an immediate opening in a second grade classroom. We thought...Yikes...YES!...What do we do? All at the same time! This was just after Christmas break and I realized, maybe this was where God was heading. We jumped in and they met us with open arms and an aggressive approach to Ashlin's needs. It's been just over 12 weeks and in that time they pushed her through all four steps of the Response to Intervention plan, and as of last Wednesday, she is now a part of the special education program. We've been amazed at the way they've recognized her needs and been pro-active about meeting them.
All of this lead up, comes to this. I want to share this and express with fervancy, if you find yourself with a struggling child, that you have power. That you should question everything. And you should never settle. You must be a bulldog. You must be insanely aggressive. And you cannot let them convince you that they know your child better than you. Let me tell you what I discovered in our meeting last Wednesday. When the psychologist pulled out all of our paperwork and testing, both our private and from the county, she asked if I realized that we'd previously signed a waiver that said we would not seek special education services again in the county because we agreed with the school psychologist. That had not been what we were told. And we had only been shown the last page, apart from the rest of the test. There were literally only a few lines for us to sign and nothing else. THIS WAS OUR VERY IGNORANT ROOKY MISTAKE!
She went on to explain to me that to her shock, as she'd reviewed the test done at the previous elementary school, the psychologist had taken the test results in numbers and had falsified them when she transferred them to word form. So, for example, in the area of auditory processing she tested far below average, was in the range of intervention, and it was charted as such. Yet when she transferred it to the next page that we were shown, she wrote AVERAGE on everything. Across the board. Literally in all areas but one, she tested far below average and in the range of needing major intervention. Yet we were told that there was no evidence that she needed any further intervention. Then they had us sign that we agreed and wouldn't seek further action. I'm more than a little emberassed by the fact that we were so floored with the results that we didn't ask any more questions and didn't seek further action because we felt like they knew what they were talking about. And why would they lead us astray? Even though it never settled with us and we always felt like something was fishy. At the time we were on our own, trying to figure this thing out by ourselves. Royally stupid!
I wrote a letter to the offending school in hopes that they would feel some challenge in my words to address this issue (this was just after her diagnosis, and before her transfer to Cherokee Charter). Because there are children other than mine who I'm sure are being treated just the same. And what happens to those children when there's no one to go after change for them? It breaks my heart to consider it. A week later I recieved an email from the principal asking to meet with me because he'd love the chance to try and address our needs again. I didn't even consider it. They know now they'd be elligible for more money from the state now because of her diagnosis. I was more than offended. I told them we wouldn't set foot in the school again. And that we weren't even considering having our kindergartener there next year. We'd do anything we had to do to keep her from the place.
Maybe that sounds hard and cold. And I'm not often an aggressive person. But let me tell you something that I've learned over the past four years. You cannot leave your children's education and needs to the system. You cannot trust their experts even, which is incredibly disturbing. But, here's what I can tell you. You know your child. Trust your heart and your gut. Seek help. And do it privately. If you can't afford it and your insurance won't cover it, send me an email (deyoder@liberty.edu) and I'll give you the name of our psychologist. She's amazing and has a heart to help. They are THOUSANDS less than most other places and they will work with you. She's extremely thorough! Your private results must be acknowledged in the schools. They may do their own testing, but you have a solid place to start. Look into parent advocates through your county. These are people who know your legal rights as a parent and will work to get your child's needs met with you when you come up against road blocks. Don't settle. It took three schools to find the right one. We learned something at all three. I'm sure we'll continue to learn as this will be something we have to continue to stay on top of for the rest of her education...it won't go away. And lastly, be responsible for your own child. The school can only do so much. You have to be their advocate in every way. At home. And at school.
I wish I had flowery words of encouragement. And I do want you to be encouraged, but I also want it to spur you on to be an investigator. There is help. There is hope. And there is a place for your child. There are options once there's a diagnosis. And so many ways to address their needs. I'm here. Please, ask questions, if you have them. I'd love to help and encourage any way that I can!

























































